Communicating rare diseases and disorders in the digital age [electronic resource] / edited by. Liliana Vale Costa and Sónia Oliveira.
- 其他作者：
- 其他題名：
- Advances in medical technologies and clinical practice book series.
- 出版： Hershey, Pennsylvania : IGI Global 2020.
- 叢書名： Advances in medical technologies and clinical practice (AMTCP) book series
- 主題： Rare diseases--Information resources. , Medical informatics. , Communication in medicine. , Social media in medicine.
- ISBN： 9781799820895 (ebk.) 、 9781799820888 (hbk.)
- URL：
電子書
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- 一般註："Premier Reference Source" -- Cover. Includes bibliographical references and index. Chapter 1. Talking about rare diseases: a compendium on rare diseases and online news -- Chapter 2. Health-related communication and rare diseases: a passport for the patient journey -- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases -- Chapter 4. Digital media in rare diseases or "knowledge is power": the role of eurordis in creating awareness and diagnosing rare diseases -- Chapter 5. Public media coverage of rare diseases and disorders: the case of Spanish public broadcasting corporation -- Chapter 6. Representation of patients with rare diseases in Spanish media -- Chapter 7. Networks in rare diseases: identities, partnership, and advocacy in Brazil -- Chapter 8. Challenges of parents with children with rare diseases in Portugal: a relational perspective -- Chapter 9. Neuropsychiatry in late onset tay-sachs disease: key features and possible etiology of psychosis -- Chapter 10. Portraying rare and misdiagnosed diseases in movies: a content analysis, 1980-2018 -- Chapter 11. How is the administrator's experience in managing health facebook groups?: the impact of social media in patients with IBD. 110年度臺灣學術電子書暨資料庫聯盟採購
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讀者標籤：
- 系統號： 000292282 | 機讀編目格式
館藏資訊
A primary concern of rare disease diagnosis is the lack of accurate information that may lead to delayed interventions, administering inaccurate treatments, and social consequences. Health communication continues to be one-way and rely on the expertise from the health practitioner. In such a broad spectrum of rare diseases, patients may find it difficult to obtain timely information, accurate diagnosis, and appropriate treatments, surgeries, medications, or psychological counseling in their own countries. The use of information and communication technologies can create new communication channels that address this lack of knowledge. Communicating Rare Diseases and Disorders in the Digital Age is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. Featuring research on topics such as support networking, eHealth management, and social computing, this book is ideally designed for health practitioners, physicians, patients, medical administrators, nurses, surgeons, infectious disease educators, hospital directors, world health organizations, academicians, students, and researchers seeking coverage on current advances in health communication, computer science, and epidemiology.
摘要註
"This book explores the use of computer-mediated communication in rare diseases and disorders"--